alexxkay: (Default)
Alexx Kay ([personal profile] alexxkay) wrote2007-02-25 09:29 pm
Entry tags:

CPAP Diary

Day 13: Kept the mask on all night, but still didn't sleep terribly well. Woke after 9 hours, because I was hungry.

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Day 14: Everyone's suggestions from last post led me to experiment some with the strap settings. Very frustrating, and I gave up and took it off entirely after about an hour. Felt somewhat feverish at that point, might be coming down with something. It occurs to me that going through this while under so much stress from work is not optimal. But if I put it off now, when *would* I do it? I'm way too good at finding excuses not to do stuff :(

Got about 10 hours total, though the first hour didn't have much actual sleep.

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Day 15: Managed ~3.5 hours with the mask. Then had a bout of tossturn that left me frustrated with leaks, so I took it off.

Total sleep ~9.5 hours. Felt quite rested, though, and woke before my alarm went off. This may work out yet, if I can make it through the adjustment period...

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Day 16: Seven hours under the mask. Notably including some tossturn episodes in which I managed to keep the mask seal on without fully waking up. Didn't keep working all night, though, so eventually took it off. Total sleep 9 hours.

Incidentally, discovered a new failure mode. Certain types of slow leaks, when one is only half awake, sound remarkably like a mouse squeaking about nearby.

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Day 17: Only managed 2.5 hours in mask last night -- very bad leakage. 10 hours total.

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Day 18: Another bad night. 2.5 hours masked. 9 hours total, but woke up feeling sick. Mostly work stress, I expect... Ended up calling in sick.

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Day 19: Major progress! I figured out last night that there was an adjustable connector on the mask which, though I had never intentionally done anything with it, had somehow got badly out of true. Once re-adjusted, the severe leaking problems were gone! There are still occasional minor leaks, but nothing like what I had been dealing with.

Kept the mask on all night, and slept 11 hours. Woke up feeling, if not exactly perky, at least decidedly NOT sick.

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Day 20: Under the mask for 8.5 hours, then about .5 hours without.

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Day 21: All night under mask, 9.5 hours. Very vivid dreams the last two nights.

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Day 22: All night under mask, 9 hours. Slept poorly for the last hour or so, probably due to hunger.

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Day 23: 9.5 hours, all masked, alarm terminated.

Some leakage issues in the last few hours, I think due to dryness. Yes, the CPAP has a humidifier, but its tank only holds enough water for 6-7 hours of operation. I still have some hopes of reducing my sleep need down to that, but it hasn't happened yet.

Tonight will be interesting. It's Boskone, so this will be my first time trying the CPAP 'on the road'. We're only staying one night, though, so hopefully nothing *too* bad will happen...

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Day 24: OK, trying the mask at a con was over-optimistc at this stage. In my own bed, I can usually adjust it now without totally waking up. In an unfamiliar bed, with [livejournal.com profile] kestrell snoring nearby, not so much.

4.5 hours masked, 8.5 total, alarm-terminated.

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Day 25: 10.5 hours of blessed sleep in mine own bed! Wore the mask for most of that, but don't remember exactly when I took it off, ~7 hours? Again, dryness was becoming an issue.

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Day 26: 7 hours under mask, 9.5 hours total.

I begin to grow discouraged. 9.5 hours is my baseline. The point of this exercise (from my point of view) was to reduce that. Whatever benefits the mask is giving appear to be *exactly* balanced by the annoyances. I'm not giving up yet, but I'm starting to consider it...

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Day 27: 9.5 hours of sleep total, masked: ? I woke up in the wee hours and it was off, though I don't remember removing it. maybe 4 or 5 hours?

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Day 28: *Not* a good night. Stayed up rather too late. Couldn't seem to find a mask position that wasn't simultaneously constrictingly tight *and* loose enough to leak a lot. After 2.5 hours, gave it up as a bad job. Total sleep 9 hours.

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Day 29: Had a much better day at work yesterday, so was more able to face the mask with a positive attitude last night. When I'm able to let the smaller leaks not bother me, things go smoother. Still, there's little to be done about the tossing and turning. 8 hours masked, 10 total.

I think I'm gonna give this until Day 40. If there's still no hint of improvement by then, I'm going to stop using it.

Plan B is to get a professional allergist to address *that* issue and see if he can help. Well I was planning on doing that *anyways*, once the CPAP thing had stabilized one way or another. In addressing chronic issues, I figured it was probably best to start by addressing one variable at a time.

The insurance plan at work is changing again on April 1, which is also right when we should be done with Bioshock. Methinks I should set up an allergist appointment for early April.

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Day 30: 9.5 hours, 6 masked.

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Day 31: 7 hours masked, 8 total. Don't feel fully rested, but I'm definitely awake now. Mildly promising sign...

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Day 32: 8 hours masked, 11 total. Averaged with yesterday, that comes to... 9.5. Sigh.

Got the straps reasonably comfortable, but after the humidifier runs out, the air eventualy gets cold and dry enough to be a problem.

cpap humidfyer

[identity profile] cvirtue.livejournal.com 2007-02-26 02:47 am (UTC)(link)
Can the humidifyer be adjusted to suck up a little less water?

John's model takes about an inch of water across a (?) 4x5" footprint, and there's still water in the morning (after 8 hrs.)

Vivid dreams are likely a strong indicator of success.

Are you turning out the lights at a regular time each night? Dull regularity can often aid in these things.

As for your deadline, not sure what I can say to that. John and Dsrtao felt they were caught up on their sleep deficits after about a week or so, iirc, but they didn't have the problems you've been having.

I think you may need to talk with the pros again -- this is not working well for you and there may be other options to try (different mask types, for example; I think there are 2 or 3 main styles, but they're rather different.)

[identity profile] elizabear.livejournal.com 2007-02-26 06:04 pm (UTC)(link)
Do you also have a humidifier in the room? It could help, since the CPAP wouldn't have to try so hard to humidify the incoming air.

What kind of mask do you have? DSR has the full face, like a fighter pilot. My dad had just the nasal one, and had to switch to the full face.

[identity profile] patrissimo.livejournal.com 2007-02-27 08:00 am (UTC)(link)
I feel some kind of schadenfreude in seeing you try so much harder than I ever did to make it work, and yet still failing. Ah well, I'd much rather you succeeded.

The humidifier running out issues are surely solvable - it shouldn't be hard to expand the tank, or to wake up long enough to pour more water in it. I rarely go more than 4 hours without waking up completely, but that may be unusual.

What part of your body is causing the apnea? I just spoke with someone this weekend who had a series of surgeries for his apnea: two RF treatments of his lower palate, and then the removal of part of his uvula, as well as a turbinate reduction. My turbinate reduction didn't do shit, but his uvuloplasty sounded pretty effective.

Unfortunately my apnea is nasal rather than palate, which is far more unusual and thus doesn't have treatments. But if yours is back of throat related, RF shrinkages are minimally invasive and sometimes effective. Also he told me there is a new treatment where they basically stick an angiogram catheter up your nose in order to widen the openings to your sinuses, so I may try that.

I assume you've tried the nasal antihistamine spray, Astelin? Didn't seem to help me much. What helps me the most are breathe-rite strips and dilute Afrin (dilute so as not to get too much rebound congestion).

[identity profile] patrissimo.livejournal.com 2013-01-26 01:05 am (UTC)(link)
Hey Alex. I'm trying CPAP again, much more thoroughly. One thing I've done very different from last time is educating myself via the great patient forums, primarily:

cpaptalk.com

Besides learning lots and lots of details about how to manage the numerous fiddly problems that come up with CPAP, the most important thing I've gotten is the lesson: 1) CPAP is really hard to get used to for many people, it requires a lot of research, management, and experimentation. 2) If you do that work, and wait for months, CPAP works really well for most people, and transforms their lives.

I know you weren't looking at it as a quick fix, but 40 days is actually not that long for acclimating to CPAP and finding a mask/machine/humidifier/etc setup that works for you.

Also, I'm not seeing any output data from your machine here, like AHI. Machines, masks, and humidifiers have all advanced enormously in the last 6 years, including their ability to track data and tell you things. Unless you've fixed your airway some other way, and are bounding with energy, you might want to consider giving CPAP another try. Untreated sleep apnea does horrible things to the human body and brain over time. I can recommend books, machines, programs, etc...